Caring in the Shadows: Lived Experiences of Indigent Primary Caregivers of Patients with Schizophrenia in Rural Philippines (76162)

Session Information: Mental Health & Professions
Session Chair: Reynold Varela

Wednesday, 27 March 2024 10:05
Session: Session 1
Room: Room 607
Presentation Type: Oral Presentation

All presentation times are UTC + 9 (Asia/Tokyo)

Diagnosis within the schizophrenia spectrum places a huge burden, not only on the patients, but also on their caregivers who live with them and interact with them regularly. This qualitative phenomenological study is about the lived experiences of indigent primary caregivers of patients diagnosed with schizophrenia spectrum disorders in General Luna Quezon Province, Philippines. Ethical standards on trustworthiness and rigor were followed. The data gathering was accomplished through unstructured one-on-one interviews with seven (7) participants, who were purposively chosen using criterion sampling. Narratives were transcribed and analyzed using Smith et al. (2009) interpretative phenomenological analysis. The study revealed four (4) major superordinate themes: (1) Guided by Culture: Embracing the Caregiving Journey with Filipino Values , (2) Emotions Unveiled: Mapping the Emotional Trajectory of Caring, (3) Unseen Warriors: Fighting Silent Battles and Overcoming Untold Struggles, and (4) Boundless Devotion: Navigating the Altruistic World of the Primary Caregivers. Findings showed that participants’ experiences underscore the profound impact of Filipino cultural values on the caregiving experience and emphasize the emotional complexity of caregiving for individuals with schizophrenia. There were also challenges and difficulties faced by the participants. Their altruistic world involves immense sacrifices they make, the transformative impact on their identities, and the coping strategies they employ to navigate the challenges they faced. The insights gained from the participants can inform tailored support systems and interventions, benefiting similar caregiving situations. The study has implications for improving mental health programs and aiding both patients and caregivers.

Authors:
Jona-Mae de Torres, Calayan Educational Foundation, Inc., Philippines
Juliet San Luis, Calayan Educational Foundation, Inc., Philippines
Maurice R. Villafranca, Calayan Educational Foundation, Inc., Philippines


About the Presenter(s)
Ms. Jona de Torres is psychology major graduate. Her research is about Filipino caregiving experiences in schizophrenia. She advocates for tailored mental health support systems, aiming to improve programs for patients and caregivers alike.

Connect on Linkedin
https://www.linkedin.com/in/mimidetorres/

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Posted by Clive Staples Lewis

Last updated: 2023-02-23 23:45:00